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護理研究 MEDLINEScopus

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篇名 癌未病患健康相關生活品質內涵之確認
卷期 7:2
並列篇名 Defining the Content Domain of Health-Related Quality of Life for Terminally III Cancer Patients
作者 楊克平尹祚芊
頁次 129-144
關鍵字 癌未病患健康相關之生活品質生活品質內涵Terminally ill cancer patientsHealth-related quality of lifeThe content domain of lifeTSCIMEDLINEScopus
出刊日期 199904

中文摘要

     本研究之目的在確認及解釋癌末病患生活品質之內涵。研究經立意取樣,針對某醫學中心之50名末期癌症住院患者為對象;採用同步之方法上的三角交叉檢視法(simultaneous methodological triangulation )收集與分析資料。質性資料係根據其中的20 位病患,以低結構開放性訪談錄音為基礎;量性資料以生活品質內涵問卷收集之。 質、量性資料之收集方法與工具均經信、效度檢測,並經相關性統計(inferentialstatistics )與內容分析法( content analysis )分析歸納以達解釋互補之效。研究綜合歸納了13項結論:一般而論,正常的生活與工作及來自家人的支持力量,均為病患提昇個人價值與生活品質的重要指標。此外,急性醫療機構中之住院癌患,雖處於末期階段,仍有 80 %正接受積極性的治療,亦有1/3 的患者對自己的病情尚處於無知或懷疑狀況;疾病末期病患生活品質的重要性應有強調的必要性。政府政策與制度的前瞻與彈性化、足夠的緩和療護機構、普及化的緩和療護理念推廣,及一周全的緩和療護品質評鑑標準,實有刻不容緩之急。根據研究結果,本研究分別就實務、教育、政策與行政及未來研究方向做了具體之建議。

英文摘要

     The purpose of this research was to identify attributes that define thecontent domain of health-related quality of life in a sample of 50 terminallyill cancer patients in a medical center in Taiwan. A simultaneous methodologicaltriangulation was used to collect and analyze data. Qualitative data werecollected from 20 subjects drawn from the study sample, using semi-structuredand taped in-depth interviews. Quantitative data were collected from the totalsample using a self-completion or interviewer-administered questionnaire whichincluded bio-psycho-social and spiritual well-being items. Inferentialstatistics and content analysis were used to analyze the resulting data.Findings shows that normal living and working life as well as support from theirfamilies were the essential indicators of the life quality and self-value of thesubjects. Based on two of the 13 key findings, i.e. that one-third of thesubjects were not aware of their terminally ill status due to the family customof

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