背　景 烏腳病為台灣西南沿海一帶特有之阻塞性血管疾病，疾病所造成的慢性疼痛致許多病人採行截肢治療，現有文獻多以生物醫學及環境流病為題， 缺乏烏腳病人主體陳述之罹病經驗。
目　的 本研究旨在瞭解烏腳病人的病痛經驗。
方　法 採民族誌研究法深度訪談五位烏腳病人，並以情境分析法分析資料。
結　果 烏腳病人敘說的病痛經驗，從感知身體症狀的「異觀」開始，到當症狀指向烏腳病時，烏腳病的隱喻挑戰著病人對罹病的接受，懷疑為何是我罹病。對罹病的解釋則框架在自己是「命定不幸的受害者」，截肢的外觀與行動不便使病人從「社會生活撤退」；而病痛經驗中的正向感知則來自於對比其他無法痊癒的慢性疾病，為自己的病痛找到生命的出口。
結　論 烏腳病人的病痛經驗與當地的社會文化脈絡關係密切，建議對地區性疾病之探究宜走入當地社群，建立在地性的社區護理知識，讓專業照護與人民及土地能緊密連結。

Background: Blackfoot disease is a unique vascular disorder confined to the southwestern coast of Taiwan. The disease causes chronic pain that eventually requires amputation in most cases. While many empirical articles have been published related to biomedical and epidemiological aspects of this disease, little is available in the literature related to patient perceptions of their experience with this disorder.
Purpose: This study was designed to explore the illness experience of Blackfoot disease patients.
Methods: An ethnography method augmented by in-depth interviews was applied in research. Five patients participated and contextualization analysis was used to analyze data.
Results: The illness experience disclosed by patients focused on their perceptions of the “abnormal” symptoms that concurrently occur to indicate the onset of Blackfoot disease. Patient reaction to and coming to terms with the disease could be summarized by the question: “why me?” The discourse on “fate and victim” occurred as they dealt with how they contracted the disease. Amputation caused psychological distress and physical dependence, which resulted in “disengagement from social life.” Of interesting note, however, is that perceptions amongst participants were relatively more positive than those of diabetic mellitus patients, who are subjected to an endless treatment regimen.
Conclusion: Discourse on the illness experience of those suffering from Blackfoot disease related closely to local social cultural factors. We suggest that professionals enter community settings in the future to better appreciate local cultural factors and develop particular knowledge to provide appropriate care for this endemic disease.