目的：健康相關生活品質（health-related quality of life，簡稱HRQL）是腦性麻痺兒童復健及教育服務上的重要結果指標。目前在台灣地區並無研究探討學齡前腦性麻痺兒童之HRQL，因此本研究的目的是比較台灣地區學齡前腦性麻痺兒童與健康發展兒童的HRQL，並與美國常模做比較。方法：本研究以立意方便取樣的方式，徵召年齡介於5歲到尚未入進入國小的33位腦性麻痺兒童及33位正常發展兒童之家長參與本研究。由照顧者填答的『子女健康問卷-家長版50 Child Health Questionnaire - Parent Form 50, CHQ-PF50）』做為兒童HRQL的評量，並利用自製問卷蒐集兒童的其它共病症等情形及基本資料。結果：本研究中的腦性麻痺兒童之CHQ-PF50『身體/生理總分』平均Ｔ分數低於美國常模平均數超過1.5個標準差。此外，腦性麻痺組兒童在CHQ-PF50的『身體/生理功能』（p<0.001)、『角色/社會限制－情緒/行為』（p<0.001）、『角色/社會限制－身體/生理』（p<0.001）、『心理健康』（p=0.02）、『自我形象』（p<0.001）、『一般健康知覺』（p<0.001）、『家長的衝擊－情緒』（p<0.001）、『家長的衝擊－時間』（p<0.001）得分皆顯著低於國內正常發展組。此外，『身體/生理總分』和『社會心理總分』得分皆顯著低於國內正常發展組（p分別為<0.001和0.035）。結論：雖然研究樣本數少，但結果顯示國內的學齡前腦性麻痺兒童在某些身體/生理面向及社會心理面向的HRQL明顯低於正常發展兒童，因此建議未來在規劃最佳化復健介入時，除了著重在兒童的動作生理功能及動作發展外，也應強化兒童社會性參與提昇兒童自我形象，及舒緩腦性麻痺兒的家長因照顧所導致過度情緒及時間的衝擊。（物理治療 2009;34(4):235-243）

Purposes: Health-related quality of life (HRQL) is considered important outcome indicators in the rehabilitation care and the educational service for children with cerebral palsy (CP). However, HRQL of pre-school children with CP has never been discussed in Taiwan. The purpose of this study was to compare the HRQL in pre-school children with CP to children with typical development (TD) in Taiwan, and to the US normative data. Methods: A purposive sample of convenience included the 33 caregivers of children with CP and 33 caregivers of children with TD participated in this study. The children were 5 years old on, but did not move on to the elementary school yet. The HRQL of child was determined by the Child Health Questionnaire-Parent Form 50 (CHQ-PF50) according to the caregiver’s response. Self-made questionnaires were also completed in order to gather the child’s comorbidity conditions and some basic information. Results: Children with CP demonstrated >1.5 S.D. below the US normative mean on the physical summary score. Compared to children with TD, children with CP in Taiwan showed statistically significant lower score in physical functioning (p<0.001), role/social limitations:
emotional/behavioral (p<0.001), role/social limitations: physical (p<0.001), mental health (p=0.02), self esteem (p<0.001), general health perceptions (p<0.001), parental impact-emotional (p<0.001), and parental impact-time (p<0.001). Furthermore, they demonstrated statistically significant lower score in physical summary score (p<0.001) and sychosocial summary score (p=0.035) than children with TD. Conclusions: Despite the small sample size, children with CP significantly reduced some of their physical and psychosocial HRQL than their peers. In future,
an optimal rehabilitation approach for children with CP should include not only promoting their physical functions and motor performance, but also enhancing their social participation and selfesteem, as well as decreasing parenting stress in time and emotion among caregivers of children with CP. (FJPT 2009;34(4):235-243)