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The Journal of Nursing Research MEDLINESCIEScopusSSCITSSCI

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篇名 Taiwanese Fathers’ Experiences of Having Their Child Diagnosed With a Developmental Disability
卷期 19:4
並列篇名 台灣父親得知孩子被診斷發展障礙的經驗
作者 黃玉苹Winsome St John蔡森蔚陳秀蓉
頁次 239-249
關鍵字 developmental disabilitychilddiagnosisfathersnursingphenomenology發展障礙孩童診斷父親護理現象學MEDLINEScopusSSCITSCITSSCISCIE
出刊日期 201112

中文摘要

背 景當孩子被診斷為發展障礙時,對父母親而言是一個危機,當探討孩子的診斷對父母的衝擊時,父母的性別須加以考量,但現今多數研究多焦點在探討母親的經驗,對父親經驗的探討相當的貧乏,因此本研究結果可提供醫療人員有關父親在孩子被診斷發展障礙時的經驗。目 的本研究目的在探討在中國文化情境下,父親得知孩子被診斷為發展障礙時的生活經驗。方 法本研究乃運用海德格(Heidegger)的詮釋現象學為研究方法,以立意性取樣在中部教學醫院募集研究對象,共有16位父親參與本研究,以深入及半結構式的訪談收集資料,以詮釋循環分析研究資料。結 果研究結果呈現四個主題:㈠失去希望、㈡失敗感、㈢對家庭的衝突感到挫折及㈣尋求正向因應策略。結 論/臨床應用父親在孩子被診斷為發展障礙時,對自我會有負向的批判及情緒,因此護理人員應主動了解父親對孩子發展障礙的感覺及想法,以便提供情緒及訊息的支持,因此不應只焦點在母親的部份。當父親與發展障礙兒的祖父母有所衝突時,必須提供適當的支持
及轉介。護理人員應該協助父親了解孩子的發展障礙,並且運用文化架構、文化信念及價值觀協助父親了解發展障礙兒生命的意義。

英文摘要

Background: Receiving a diagnosis of a developmental disability in a child can be a crisis event for parents. Gender differences in parental roles are worth consideringwhen exploring the impact of having a child with a disability. However, most studies on this topic have focused on the mother’s experience, and little is known about what the father goes through as the parent of a child diagnosed with a disability. Even less is known regarding this experience in the context of the Chinese culture.
Purpose: The goal of this study was to explore fathers’ experiences
of having a child diagnosed with a developmental disability in a Chinese cultural context.Methods: This study used a hermeneutic phenomenological approach informed by the philosophical world views of Heidegger.The 16 fathers who participated in the study were purposively sampled from a teaching hospital in central Taiwan. Data were collected using in-depth and semistructured interviews and were analyzed using hermeneutic analysis.Results: Data analysis revealed four shared meanings: losing
hope, feelings of failure, being frustrated with family conflicts,
and searching for positive coping strategies.Conclusions/Implications for Practice: Fathers feel shock and despair as well as personally devalued when learning that their child has been diagnosed with a developmental disability.Chinese cultural beliefs and values can elicit different experiencesfor fathers while helping them make sense of their experiences
and accept their child in meaningful ways. Nurses can actively engage fathers as well as mothers to understand their feelings and thoughts about their child’s disability to provide appropriate emotional and informational support. Providing support or referral is necessary particularly when fathers encounter issues with the child’s grandparents. Nurses can assist fathers to find a way to make sense of having a child with a disability within their cultural frame of reference by adapting cultural beliefs and values to their situation and to make meaning of their child’s life.

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