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身心障礙研究

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篇名 發展遲緩兒童主要照顧者之生活品質研究
卷期 10:1
並列篇名 Primary Caregivers of Children with Developmental Delay the Quality of Life
作者 鍾燕宜潘雨辰陳冠蘭郭煌宗
頁次 020-039
關鍵字 生活品質主要照顧者發展遲緩兒童Developmental delayedPrimary caregiversQuality of life
出刊日期 201203

中文摘要

研究目的:一、比較發展遲緩兒童(遲緩組)與一般兒童(一般組)主要照顧者的生活品質差異;二、主要影響發展遲緩兒童主要照顧者生活品質之因子。研究方法:本研究為調查研究,採用橫斷面研究設計,以立意取樣之抽樣方法方便取得樣本。有效收案對象為62位發展遲緩兒童及60位一般兒童的主要照顧者。所使用的統計方法包括:獨立樣本t檢定、卡方檢定及複迴歸分析。結果與結論:遲緩兒童主要照顧者之生活品質在心理、生理、社會關係及環境面向皆與一般兒童主要照顧者無明顯差異,亦即遲緩兒童家庭的生活品質不低於正常發展孩童的家庭。係因主要照顧者在照顧特殊需求孩子過程中,通常採以滿足帅兒的安適感,犧牲自身需求之『委身原則』,評價其生活品質。因此,遲緩兒童家庭主要照顧者具有更大的承受與適應能力。另外複迴歸分析結果顯示,家中子女數及家庭月收入,是影響遲緩兒童主要照顧者生活品質的預測因子。

英文摘要

Objectives: The objectives of this study are (1) to compare the differences of quality of life between primary caregivers with developmental delayed children (DD group) and with developmental normal children (DN group); (2) to investigate the predictors of quality of life in DD group. Methods: This is a cross-sectional study using purposive sampling method. There are 62 and 60 primary caregivers in DD group and in DN group, respectively. Two-sample t test, chi-square test, and multiple linear regression are used. Conclusion: There are no differences between the two groups in the dimensions of psychology, biology, social relationships and environments. In other words, the quality of life of primary caregivers in DD group is not lower than DN group. Under the circumstances, the "commitment principle" could be used to explain that. To take care developmental delayed children and to provide powerful assistance, the primary caregivers usually tend to sacrifice their personal demands. Accordingly, the primary caregivers in DD group have stronger endurance and adaptation than the DN group. Furthermore, we found that the number of children and monthly income can successfully predict the quality of life of the primary caregivers in DD group.

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