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東吳社會工作學報

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篇名 心智障礙者自我倡導團體的發展——八個單位比較
卷期 31
並列篇名 The Development of Self-Advocacy Groups for Persons with Intellectual Disabilities: A Comparison of Eight Organizations
作者 王育瑜
頁次 077-116
關鍵字 心智障礙者自我倡導自立生活自我決策persons with intellectual disabilitiesself-advocacyindependent livingself-determination
出刊日期 201612

中文摘要

自 1970 年代中期起,「自我倡導團體」在世界各國紛紛成立,使心智障礙者在支持 與充權下自我決策與發聲。國內1990 年代中期起陸續成立「智青團體」,而「自我倡導」 概念的導入則源於2008 年中華民國智障者家長總會「自我倡導」交流平台的成立。本 研究目的是探索國內自我倡導團體發展脈絡與作法,以為後續相關工作推展之參考。研 究採質性探究取向,深度訪談方式蒐集資料。研究對象為較為穩定推展「智青團體」工 作且持續參與智總自我倡導交流平台的8 個單位的15 名單位工作人員與3 名心智障礙 青年(智青)。研究發現這些自我倡導團體的成立,皆源於專業人員因應「服務」與「服 務對象需求」間的落差而設計。各單位皆透過主題式小規模定期聚會,長期支持心智障 礙者發展自我倡導。然而隨著組織脈絡與服務定位的差異,不同單位發展出不同的運作 方式與內容。對照自我倡導文獻與國外自我倡導運動,本研究建議未來強化自我倡導者 彼此的網絡連結、智青自我權利意識覺醒與對自己生活及所接受服務的自我決策,才能 更符合「自我倡導」是心智障礙者主導的社會運動之本質。

英文摘要

Since the mid-1970s, self-advocacy groups could be found all over the world. Persons with intellectual disabilities are supported to make self-decision and make their voices heard. In Taiwan, since mid-1990s, more and more ‘Groups of persons with intellectual disabilities’ were formed. In 2008, the idea of ‘self-advocacy’ was introduced via the Self-Advocacy Platform formed by Parents’ Association for Persons with Intellectual Disability, Taiwan (PAPID). The purpose of this study is to explore the contexts and current operation styles of various self-advocacy groups in Taiwan. Qualitative approach was adopted and in-depth interviews were taken. Participants were 15 service providers and 3 self-advocates from 8 organizations which developed self-advocacy groups in the earliest time and those which have stable participation in the Self-Advocacy Platform. We found that the initiation of these self-advocacy groups was from professionals’ perception of the gap between clients’ needs and services. Through small-size regular meetings on various topics, these groups support persons with intellectual disabilities to develop self-advocacy. Besides, with the differences in organizational contexts and definitions of the role of self-advocacy in existing services, these organizations developed different styles of operation and contents. This study suggests the development of more networking among self-advocates, enhancement of self-advocates’ awareness of rights, and self-determination in their everyday lives and services they receive. Thus, self-advocacy will then reflect more of its real nature.

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